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Finding My Sparkle Day 143: Tuesday 24th July 2018

 

This morning I had my first appointment at the Brain Injury Clinic following my accident in March and I feel it marks the start of the next chapter in my post-concussion syndrome recovery.

I’d been sent to the clinic by my doctor to get help with my recovery as I’m still struggling with a lot of symptoms with new ones developing recently.

The consultant confirmed my doctor’s post-concussion syndrome diagnosis. He gave me the results of the CT scan I had last week which doesn’t show any permanent brain damage. Yaaaaaaaas! He asked what I remembered leading up to the accident and after and said that my brain is badly bruised and will need to re-learn how to function properly.

 

Referrals for treatment

I’m getting referred to neuro physiotherapy which is physiotherapy specifically for treating brain injuries.

This is great news as my mobility I feel is the biggest of my issues. What I want my legs to do and what actually happens are two very different things and it gets worse when I’m in noisy environments or fatigued or my brain is just having a freak out.

I’m also being referred to an occupational therapist to help with things like memory and cognitive issues.

He said another lady might want to see me but I can’t remember specifically what that was for.

He’ll look into what services are available locally and I might have to travel. Hopefully there will be what I need within Angus or Dundee so I don’t have to travel far.

 

A reminder to be patient

I’ll be back at the clinic in 4 months and he expects to see some improvement then.

Meantime I have to be patient and resist the temptation to overdo things on good days. I feel like I’m trying to learn this lesson a lot! It is so hard trying to judge what I’m capable of but for sure I’m taking rest more seriously now.

I think my definition of a good day has changed somewhat. A good day now is nothing like a normal day before the accident. That’s ok though. It’s all part of my recovery and as time goes on I hope to raise the bar on what I consider a good day.

 

Looking forward to the next chapter

I’m feeling really positive knowing I’m getting the help I need and I’m ready for this next chapter. I have a lot of hard work ahead of me but I will do whatever it takes and listen to all the expert advice I’m given.

This recovery has taken way longer than I ever imagined and the last couple of months I feel as though my recovery has halted. It’s like I went as far as I could without any specialist intervention and if there are any improvements it’s so slow I just can’t see it.

It’s time to get this recovery back on track and I’m so grateful to be getting the help I need now.

Thank you so much for all your love and support. It means the world to me.

 

My message to my warriors

Referrals for specialist help and the treatments available can vary so much from country to country. If you’re struggling with your symptoms please do all that you can to access help in your area.

Here are a couple of Facebook groups I’m in with lots of PCS warriors that you can ask:

UK Post Concussion Syndrome Support Group (UK only)

Post Concussion Syndrome Support Group (worldwide)

 

What treatments have you tried and how have they worked out for you? Pop into the comments below and let me know.

I know how incredibly scary life can be when you’re living with PCS but I don’t want you to feel alone. I’ve got your back and if you need to chat any time, please get in touch. You’ll also find me sharing my journey daily on Instagram so feel free to connect and say Hi!

And remember, you’re not broken, you’re finding your sparkle so do something every day that makes you happy!

Much love,

AJ x

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